Books & Resources

Adley Health is a mobile app inspired by the co-founders’ personal experience caring for someone living with Parkinson’s disease. The app is designed to help families coordinate support for their loved ones by providing a centralized hub for creating care plans, tracking medications and appointments, accessing helpful resources, and securely sharing important information with family members and other caregivers.

Joel Havemann incorporates relevant scientific information about Parkinson’s disease into his own story of living with the condition. “A Life Shaken” includes facts, diagrams and a glossary of information about Parkinson’s and presents the information as engaging and accessible.

From an ordinary guy who has done some extraordinary things throughout his life. A baseball National Champion, certified tennis professional, a Boston Marathon runner, and a high school baseball and tennis coach who has brought teams to championships — as well as confronting the biggest challenge in his life. Inspirational, motivational, instructional, and often humorous stories, and the life lessons taken from his experiences. CreateSpace Independent Publishing Platform (May 2015).

Alter Your Course Parkinson’s the Early Years is a new book to help you shape your future with Parkinson’s. (Paperback 2014)

The American Parkinson Disease Association (APDA) is the largest grassroots network working tirelessly to provide the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest. APDA has a unique nationwide system of Chapters and Information & Referral Centers, delivering education, support, and patient services to Americans with PD each day. Since its founding in 1961, APDA has raised and invested more than $170 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD. Learn more at www.apdaparkinson.org.

Hadley Ferguson, MJFF Patient Council member and Catherine Armsden, a painter and a writer, have each spent years seeking a diagnosis for their troubling symptoms. When they are finally diagnosed with Parkinson’s disease, they meet in an online support group and quickly become long-distance friends. But for Hadley, the shared diagnosis is still not correct. She embarks on a traumatic, six-state odyssey that Catherine documents in vivid detail.

It has been twenty years since Alan Cohee was diagnosed with Parkinson’s disease. He invites you into his life to see how he has faced the journey from his diagnosis.

This nontechnical, personal guide, written by John M. Vine, covers John’s experiences since his Parkinson’s diagnosis 12 years ago. It includes advice on all aspects of the disease plus interviews with people with Parkinson’s and their partners.

This book is for patients and caregivers who are considering clinical trial participation but may feel uncertain about how trials work, how to find appropriate studies, and what participation really involves. The goal is to provide clear, balanced and practical guidance to empower patients and families to make informed, confident decisions.

A culmination of over twenty years of personal experience, in A Soft Voice in a Noisy World Karl Robb provides an assortment of tips and suggestions that have made a difference in his life and benefited him in his personal struggle with PD.