Joining a research study is an empowering and impactful choice. There’s a role for everyone on the road to disease discoveries and new treatments. Here we share what to know and how to get started.
Six Things to Know about Joining a Study
Better care and new treatments are only possible with study participant partners.
Here’s what to know about research.
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There Is a Study for Everyone
Studies need people diagnosed this year or 20 years ago. With risk factors or no connection to disease. With or without deep brain stimulation. You can find the right study to fit your profile and your needs.
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Studies Need Diverse Participants
All people with Parkinson’s need better treatments. Diversity in studies (race, ethnicity, geography, education level, sexual orientation, etc.) helps scientists learn more about the disease and how to stop it for all.
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Not All Studies Test New Drugs
Clinical trials testing new treatments are critical for better care. But many studies look at the causes and progression of disease. These observational studies teach about disease so we know how to stop it.
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Studies Can Be Done at Home
Technology is letting scientists learn more about day-to-day life with disease from more people. Online, smartphone or telehealth studies can allow you to contribute from where you live.
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Studies Work to Minimize Risk
Study teams make plans to protect participants as much as possible. They use safety checks and data security systems. A review board must approve those plans before the study can begin.
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Studies Bring Value to Participants
Joining a study can help people feel like they’re making a difference. Studies also can introduce you to medical experts. Some studies give you information on your own health.
Take Action
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Fox Trial Finder
This online tool lets you search for studies by location and other personal details.
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PPMI
Our landmark study on how Parkinson’s starts and changes is open to many. Find your PPMI starting point.
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Fox Insight
Anyone aged 18+ can join this study to share their experiences and perspectives.
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Share Your Story Form
Raise your hand for focus groups and panels that shape how research is done.
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More Recruiting Studies
Read a quarterly update of new studies looking for volunteers.
“It’s Something that I Can Do”
Hear from our community on experiences in research and how every contribution leads to better understanding of Parkinson's and new treatments.
Resource Library
Ready for a closer look? Get more information below.
Navigating Clinical Trials Guidebook
This guidebook was created with study participant partners. "Research participation motivates us, inspires us, empowers us and gives us purpose as we navigate daily life with the disease," write members of the Foundation's Patient Council.
"Navigating Clinical Trials" in Other Languages
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Deutsch, Español (Amer), Español (ES), Français, Italiano, 日本語, English (AU, CA, UK)
Volunteering for Research Webinar
In our Third Thursdays Webinar series, panelists cover how to find the right study for you, what to expect as a participant, and how you can help shape what and how research is done.
Genetic Testing Information Webpage
Some studies recruit people based on their genetic status. There are varied ways to learn if you carry a genetic variant tied to Parkinson’s risk. Learn more on this site about genetic testing.
