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Guides for Living Well with Parkinson's

In easy-to-read, downloadable guides, movement disorder specialist Rachel Dolhun, MD, and other experts provide practical tips and real-world advice for navigating life with Parkinson's disease.

  • Exercise and Brain Health Guide

    For people living with Parkinson’s disease (PD), exercise can raise questions: Why should I exercise? How often should I exercise with Parkinson’s? Will working out affect the medications I take for PD? How can I motivate my husband/wife/loved one with Parkinson’s to exercise? In this guide, we share answers to these questions and many more.

  • Diet and Brain Health Guide

    A healthy diet can be a powerful tool to boost health and well-being, whether you live with Parkinson’s or not. For people with Parkinson’s, diet can ease symptoms and boost medication benefit, too. This guide tells you how and also offers tips and tricks for healthy eating, cooking and meal prepping; sample recipes; community member perspectives; and more.

  • Medical Marijuana & Parkinson's Disease

    One of the most common questions people with Parkinson’s ask is, “What about medical marijuana?” Many are curious if and how it might work for different symptoms, and what the research says. In this guide, we offer information about medical marijuana and Parkinson’s, tips for talking with your doctor, and more.

  • How Do You Find the Right Parkinson's Doctor?

    The best doctor for you has the right credentials, and a personality, practice and treatment approach that match your wants and needs. But how do you find that doctor? Consider these tips.

  • Deep Brain Stimulation and Parkinson’s

    This resource educates patients and care partners about deep brain stimulation (DBS) surgery as a treatment option to help manage symptoms, provides practical tips for thinking about, undergoing and living with DBS, includes perspectives and voices from the patient and family community; and shares the latest research and DBS devices available.

  • Mood Changes and Parkinson’s

    Mood changes, such as depression, anxiety or apathy (lack of motivation) can happen to anyone, but they may be more common in people with Parkinson’s disease (PD). Here, find answers to common questions about mood changes in Parkinson’s.

  • Thinking, Memory and Parkinson's Disease

    Thinking and memory changes can be among the most concerning potential symptoms of Parkinson’s. This guide was developed in collaboration with patients, families and clinicians to offer definitions of cognitive changes and strategies to manage these changes if they occur.

  • Paving Your Path Over Time

    Living with Parkinson’s for many years or decades can bring new or more symptoms, care needs or emotions for people living with PD, their care partners and families. Learn more and get practical tips for progressing Parkinson’s.

  • Looking Ahead with Parkinson’s

    No matter where you are in life or with Parkinson’s, it may be helpful to think about and plan for the future. Get step-by-step guidance, information and tips for considering the future, making plans and talking with loved ones.

  • The Language of Parkinson’s: Common Terms to Use with Your Doctor

    As more treatments for Parkinson’s become available for doctors to prescribe to their patients, it is important to review how PD is discussed in research and care. For greater confidence in talking with your doctor and managing your symptoms, familiarize yourself with commonly used terms.

  • Visiting with Family Members Who Have Parkinson's

    When visiting family who have Parkinson's, you may not know what to expect or how to talk about and manage change. In this guide, Dr. Dolhun provides practical tips on preparing for and getting the most out of your visit.

  • Stress and Parkinson’s Disease

    Stress comes in many shapes and sizes, but we all have it. For people with Parkinson’s, stress can bring on or worsen symptoms. It might increase tremor or bring on a freezing episode (a sudden, temporary inability to move). Here are a few tips to help lessen stress and defuse tense situations.

  • Summer, Travel and Parkinson’s Disease

    During the warmer months, people with Parkinson’s disease may need to take extra precautions to make the most of experiences while outdoors and on vacation. Consider these five tips this summer.

  • Talking to Children and Teens about Parkinson's

    No matter when or how Parkinson's enters a child's world, they will likely have questions about the disease and also fears or misinformation. This guide offers practical tips to help you have a productive conversation about Parkinson's with children of all ages.

  • Repurposed Therapies in Parkinson's Disease

    Repurposing — studying approved medications to see if they have benefit in Parkinson's — can potentially speed drug development. This guide discusses how drugs are repurposed and what you should consider if you are thinking about taking a repurposed therapy while it's in testing for Parkinson's.

  • Sharing Your Parkinson's Diagnosis at Work (Part One)

    If you are considering sharing your diagnosis in the workplace, use this guide to help you outline your strategy, create talking points, deliver your news and navigate others' reactions.

  • Talking about Parkinson's at Work (Part Two)

    After you've shared your diagnosis in the workplace, use this guide to help continue the conversation, manage long-term professional relationships and plan for situations you may face at work.

  • Sleep and Parkinson's Disease

    Many people with Parkinson's have trouble with sleep: difficulty falling or staying asleep, acting out dreams, and others. This guide outlines common sleep problems and their treatments and offers tips for good sleep.

  • You, Your Loved One and Parkinson's Disease

    Lonnie Ali, wife of the late Muhammad Ali and member of The Michael J. Fox Foundation's Founders' Council, offers advice about Parkinson's and relationships and how to balance caring for a family member and yourself.

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