Born and raised in Colombia, Diana Rodriguez, age 39, moved to Canada as a teenager. Now a business coach and dedicated mother to her 11-year-old son, Diana has always found joy in artistic expression — whether painting, designing, theatre or special effects makeup. However, since her diagnosis of Parkinson’s disease, Diana's passions have become more challenging.

Diana’s first sign of Parkinson’s was a tremor in her right hand. She recalls having a feeling in her gut, simply knowing that it was Parkinson’s disease. Her diagnosis was later confirmed by a movement disorder specialist. Instead of letting fear take over, she researched as much as she could about the disease, learning and preparing herself for what might lie ahead. “I am forever grateful for the ability I had to stay proactive and not get paralyzed or scared as I educated myself on Parkinson’s,” she says.

“During my research, I came across The Michael J. Fox Foundation’s study, the Parkinson’s Progression Marker’s Initiative (PPMI). Participating in the study was the best decision I’ve made throughout my journey, and I know that my little contribution is one of the many puzzle pieces that add up to a bigger picture.”

Diana is currently enrolled in PPMI at Massachusetts General Hospital. Of her experience with PPMI researchers, Diana shares, “The team has been nothing but incredible. I simply feel so cared for and lucky that I get to work with the top PD world experts.” 

Now, Diana’s efforts are focused on raising awareness of PPMI across Canada, particularly encouraging newly diagnosed individuals to consider participating in research. Through local support groups, fundraising efforts and speaking engagements, her goal is to ensure that more people feel informed and empowered.

“I know my bigger purpose of this diagnosis is to use my voice to help others, spread awareness and do my part to help find a cure. Getting involved can be the most freeing and purpose-filled thing you do. It changes the narrative from fear to action.”

PPMI researchers are actively recruiting more volunteers. People diagnosed with Parkinson’s in the past seven years can help move research forward by taking a smell test. Request your free scratch-and-sniff test today.