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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Hyam and Tom Kramer

    My Research Journey: “Hope begets more hope”

    Hyam Kramer, 62, explains why he joined the premier Parkinson’s research study shortly after receiving a Parkinson’s diagnosis.
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  • Man smiling

    My Research Journey: I Lost My Sense of Smell but Gained Perspective on Parkinson’s

    Joseph Capizzi shares his journey participating in Parkinson’s research after learning he had loss of smell.
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  • Otis and Linda Peeples

    My Research Journey: From Falling Out of Bed to Participating in a Parkinson’s Study

    When Otis Peeples learned about the connection between REM sleep behavior disorder and Parkinson’s, he took action and joined a research study.
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  • Team Fox Ninja Creates Video to Spread the Word about Parkinson’s Research

    Community member Bryan Hill shares his experience with young-onset Parkinson’s disease and inspiration for developing a video to spread the word about the Parkinson’s Progression Markers Initiative.
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  • Two people smiling at camera

    My Research Journey: On the Road for PPMI

    JP Smith shares his experience traveling to a medical center for a PPMI screening visit.
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  • Man smiling

    My Research Journey: Participating for Family

    Jerry Pollack explains why he participates in the Parkinson’s Progression Markers Initiative to honor his family members who had Parkinson’s.
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  • Man and woman smiling at camera.

    My Research Journey: I Don’t Have Parkinson’s, but I’m Helping Researchers Get to the Bottom of It

    Terry Goldin shares his experience living with REM sleep behavior disorder and participating in the Parkinson’s Progression Markers Initiative study.
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The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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