Books & Resources

Diagnosed with Parkinson's disease almost two decades ago, Mary Huston McLendon shares a collection of stories that describe her positive and straightforward approach to navigating Parkinson's.

This DVD and guidebook answers important questions for newly diagnosed patients and their caregivers. Featuring inside perspective from Michael J. Fox and expert counsel by a leading neurologist and a movement disorder specialist.

Inspiration comes from different things in a person's life. Sometimes it's from a movie, accident or friend. For author Teresa Rogers, inspiration flows from her mother, Joy. A survivor, running for her life many times from her abusive alcoholic husband, Joy rose above life's hardships. Revealed is Joy's poverty-stricken childhood, marriage at age fifteen to Rogers' father, an abusive alcoholic.

PD Movement Lab helps people with Parkinson's foster a renewed sense of self. Through practical movement strategies they can learn techniques to improve mobility and adapt creatively. And from interviews with outstanding PwPs, they can discover models and ideas for an active and engaged life.

In From Parkinson's to a Poet, author Melody Eddins shares her experiences living with Parkinson's disease and how she turned to poetry as a form of therapy and expression. Her poems are meant to inspire readers through both laughter and tears as she recounts stories from her life as a wife, mother and grandmother.

This compassionate, informative, and essentially practical book will help fill the gap too often left in doctor-patient communication. Patients are often given only minimal information about their condition and its treatment, with the family left to adapt as best they can to the long-term demands of the illness.  (Demos Medical Publishing)

Granta Books (London)

The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ways we might not be able to express to family and friends.