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The Latest from Capitol Hill: HEALTHY BRAINS Act Aims to Better Understand Environmental Risk Factors for Neurodegenerative Diseases

MJFF celebrates the introduction of the HEALTHY BRAINS Act on Capitol Hill

Ted Thompson, senior vice president of public policy at The Michael J. Fox Foundation; Rep. Jennifer Wexton (D-VA); Kristophe Diaz, executive director of CurePSP; and Parkinson’s advocates Allie Signorelli and Rick Grant celebrate the bill's introduction.

Representatives Jennifer Wexton (D-VA) and Gus Bilirakis (R-FL) introduced a new bill that would direct the federal government to research the relationship between environmental risk factors and neurodegenerative diseases including Parkinson’s, Alzheimer’s and ALS.

What is the HEALTHY BRAINS Act? 

The Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research and Innovation in Neurological Science (HEALTHY BRAINS) Act (H.R. 9233) would require the National Institutes of Health (NIH) to establish a program called the Collaborative Centers for Neurodegenerative Disease Environmental Research to conduct and support this basic, applied and clinical research. 

Each Center would engage stakeholders such as people living with neurodegenerative diseases, researchers, health professionals and nonprofit organizations and would be encouraged to pursue goals such as: 

 

  • Establishing a nationwide neurodegenerative disease data system. 

  • Creating a clearinghouse to facilitate greater understanding of environmental risk factors of neurodegenerative diseases.  

  • Providing training and educational opportunities to raise awareness about environmental risk factors and their impact on our nation’s health. 

“The introduction of the HEALTHY BRAINS Act in the House is a much-needed step forward in better understanding, treating and someday curing and preventing neurological diseases including Parkinson’s disease and atypical parkinsonisms,” said Ted Thompson, senior vice president of public policy at The Michael J. Fox Foundation for Parkinson’s Research (MJFF). “Millions of Americans stand to benefit from a concerted federal effort to examine the effects of dangerous and harmful environmental risk factors for disease. The Michael J. Fox Foundation applauds Representatives Wexton and Bilirakis for their unwavering leadership on this issue and looks forward to continuing our work together.”   

You may know Representatives Bilirakis and Wexton from their bipartisan leadership on the National Plan to End Parkinson’s Act, which was signed into law in July 2024. As implementation of the new law gets underway, we’re grateful to Representatives Bilirakis and Wexton for continuing to champion the Parkinson’s community with the introduction of the HEALTHY BRAINS Act. 

What are the environmental risk factors for Parkinson’s disease? 

With only about 30 percent of Parkinson’s risk explained by genetics, a combination of other factors including aging, lifestyle and environment can play a significant role in the development of the disease.  

Research has identified some environmental risk factors for Parkinson’s including exposure to chemicals like the solvent trichlorethylene, an herbicide called paraquat and toxins associated with military service, but many potential links like air pollution remain under-researched. Identifying these environmental risk factors and investigating their effects could support the development of new treatments or even help prevent Parkinson’s and other neurodegenerative diseases altogether. 

Learn more by checking out:  

 

How can you help advocate for the HEALTHY BRAINS Act? 

Use our simple online form to send an email to your representatives in Congress to ask them to cosponsor the bill. It only takes a minute, and every message you send gets us closer to a future free from Parkinson’s disease.

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