Study Rationale: As new treatments for Parkinson's disease (PD) are developed, it is important to understand how they might affect the health and finances of people with PD, their families, and society. Knowing this can help improve the lives of those with PD, encourage financial support to cover treatments, and inspire novel future treatments.
Hypothesis: New treatments for PD will significantly improve the health and wellbeing of persons living with PD and their families over their lifetime.
Study Design: We develop of a new model of how the onset and progression of PD (VALUE-PD) will affect the well-being of persons living with dementia and their care partners over their lifetimes and measure how new therapies will improve their health and financial security.
Impact on Diagnosis/Treatment of Parkinson’s disease: The results of the study will aid families and clinicians in making treatment decisions that are best for their circumstances, will spur treatment innovation, and target policy toward better support systems.
Next Steps for Development: As diagnostics and treatments continue to improve, future study will assess for who and how they improve the lives of PD patients and their families.